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The Amgen Prize – MIT Solve Pitch Competition Winner Announcement

SpeakerS:

Dr. Margaret Faul, VP Drug Substance Technologies & Site Head, Amgen Massachusetts, Amgen
Ignacio Munoz-Sanjuan, President, Factor-H La Luz Caregivers Programme
Marina Kauffman, Senior Venezuelan Associate

With Core Programming Sponsor

“The focus of the Amgen Prize is on how nonprofits and non-governmental organizations can use innovation to improve the journey for patients with rare diseases, from diagnosis to treatment and holistic care.” Dr. Margaret Faul
“We are proud to shine the light on this incredible work to ensure that these patients and caregivers are not forgotten.” Ignacio Muñoz-Sanjuan & Marina Kauffman

Key takeaways:

  • NGOs role in addressing health disparities: The pandemic has magnified health disparities along lines of race, ethnicity, socioeconomic status, and gender. Nonprofits and NGOs are vital in addressing these inequities by fostering community engagement and providing essential services. The Amgen Prize collaboration with MIT Solve highlights innovative solutions for patients with rare diseases, from diagnosis to holistic care. 
  • Rare disease innovation essential in supporting patients: Innovative programs like those at Factor H demonstrate the impact of targeted interventions in underserved communities, particularly in Venezuela, where caregivers face significant challenges due to Huntington’s disease, Factor H provides education, mental support, and job opportunities. 
  • Community-based programs enhance resilience in health systems: Supporting caregivers and patients at the community level strengthens health system resilience. Initiatives like Factor H address physical health and psychosocial needs, fostering a healthier, more resilient society. 
  • Public-Private partnerships for equitable health outcomes: Collaborations between corporations like Amgen, nonprofits, and communities are essential in designing public health systems that are prepared for future crises, particularly for rare diseases. 
  • Holistic care integral to addressing rare diseases: Focusing on holistic care, including mental health support and socioeconomic empowerment, is critical for managing rare diseases. Comprehensive resources contribute to psychological resilience and recovery, reflecting broader health impacts during crises. 

Action items:

  • Expand support for community-based rare disease programs: Allocate resources and funding to nonprofits like Factor H that provide comprehensive support to patients and caregivers in underserved communities affected by rare diseases. 
  • Facilitate collaborations between stakeholders: Promote partnerships between corporations, nonprofits, and communities to leverage expertise and resources in addressing health disparities and improving patient care. 
  • Prioritize holistic care in health initiatives: Integrate physical, mental, and socioeconomic support systems into health initiatives to enhance the overall well-being and resilience of patients and caregivers.

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