Nadia Bodkin, Founder, Rare Advocacy Movement
Elisha Caleb, CEO, Agrotech Plus Ltd
Holly Copeland, Executive Director, CSR, Sustainability & Impact, Horizon Therapeutics
Rachael Drew, Portfolio Lead, MIT Solve
Peter Fish, CEO, Mendelian
Claudia Lorena Garcia, Senior Consultant, TriCiclos Colombia
Vikram Karnani, EVP & President, Global Commercial Operations and Medical Affairs, Horizon Therapeutics
Kevin Keaton, Founding Partner, Red Cell Partners
William Mapham, CEO, Vula
Noryawati Mulyono, CEO, PT Seaweedtama Biopac Indonesia
Sheetal Rao, Assistant Professor of Clinical Medicine, Nordson Green Earth Foundation (NGEF)
Rohit Sahgal, Director, Sovereign Health Singapore
Eda Selebatso, Founder & Chairperson, Botswana Organisation for Rare Diseases
Catharine Smith, Executive Director, Termeer Foundation
Jeni Stockman, Senior Deployment Manager, Pendulum Systems
Durhane Wong-Rieger, President & CEO, Canadian Organization for Rare Disorders
“We have manufactured seaweed-based biopackaging since 2020 to replace single-use plastic.”
– Noryawati Mulyono
“We are applying and processing billions of clinical records and clinical events to identify one of 40 of the hardest to diagnose rare diseases.”
– Peter Fish
“We create hope for every person suffering from rare diseases and we are bringing hope to our rural community.”
– Elicia Caleb
“Our solutions learn from existing data to predict demand and allocate with precision so that resources go where they are needed with far less waste.”
– Jeni Stockman
“Most healthcare records for patients with rare diseases in Africa are still on paper. And you can’t save the world with AI if there’s no data. So we have to find a way to make the data visible.”
– Dr. William Mapham