It takes an out-of-the-box initiative to improve treatment access for those who suffer from rare diseases. More than 7,000 rare diseases affect 400 million people worldwide who often cannot access the healthcare they need, according to Holly Copeland. Technology provides new hope.
Horizon Therapeutics launched the Horizon Prize with MIT Solve to seek solutions that would leverage data and analytics in order to do the following: improve the detection and diagnosis of rare diseases; promote community and connection among patients and their advocates; address the unjust and disproportionate burden of rare diseases faced by disinvested communities and historically-underrepresented identity groups; and, unlock collaboration by patients, scientists, and healthcare providers to improve patient outcomes.
These innovations deliver more personalized and effective pathways to diagnosis and treatment for people with rare diseases.
Patrick Diamond
It is great to see rare diseases gaining world-wide awareness. We know that providing a timely diagnosis for a patient can be life changing. We know that we need to invest in underserved communities to mitigate the injustice in healthcare access. With this prize we do have the opportunity to make a difference and we will.
Sandro Morganella